AlzAuthors: the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. by Lance A. Slatton

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AlzAuthor and poet Margaret Stawowy is the editor of the anthology "Storms of the Inland Sea"

Poetry written by Caregivers about their loved ones with dementia/Alzheimer's

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If you’re new to this email, welcome! We’re glad you’re here. We email weekly with news of our latest author, podcast, and events to guide the dementia caregiving journey. Please stay with us.


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Hello ,


Do you enjoy poetry? Typically, I find reading poetry a challenge, and have been known to comment, “I don’t get it.” I confess that I ate those four words over and over while reading the anthology Storms of the Inland Sea. 


Edited by Margaret Stawowy and Jim Cokas, this gem of a book is a collection of poems written by caregiver-poets, focusing on dementia/Alzheimer’s. Their heartfelt words spoke to me, offering a glimpse into the daily life of caring for a loved one with memory loss in a way I understood and could relate to. 


Have you used poetry on your dementia journey? Are you a poet or do you simply enjoy reading it? Or both? How has this helped you?


Please read on as Margaret shares a few of her thoughts about poetry and this book. 

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“. . . Caregivers may have difficulty finding time to read a book, but not a poem or two. As for relatability, I like to think of the Duke Ellington quote: “There are two kinds of music. Good music and the other kind.” I believe that quote is applicable to poetry as well. 


Storms of the Inland Sea is not only a book but also a testament from a community of caregivers. We encompass myriad situations and challenges. Some have had more resources and support than others, but none of us were ever granted an easy path.  We all have lost people dear to us before they die. How is it that the world seems genuinely ignorant of this tragedy? How can they not see caregivers as heroes on heroic journeys?” 


Read More


Catch the replay of our virtual event Poetry for the Dementia Journey, featuring several of the authors in this poetry collection, here. It's also on the podcast.




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On the Podcast: Rayna Neises

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Our most recent podcast guest is Rayna Neises, author of No Regrets: Hope for Your Caregiving Season, who asks us to think of our caregiving years as “a season of life.” Have you ever thought of it that way? Like most seasons, caregiving comes to its own natural conclusion, opening up a new, yet to be explored, season. Please listen as Rayna shares with us her personal dementia story caring for two parents during two different seasons of life, and what she learned.


Start Listening!



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A Video Book Review from Patti LaFleur

image"Thank you, Paulette Sharkey and AlzAuthors, for sharing this beautiful children’s book with me that empowers children, and combats stigma around Alzheimer’s disease."


See it on Twitter


See it on Instagram


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New Alzheimer’s Film Debuts September 7th

image8 Above is proud to announce the worldwide release of the new feature documentary "Keys Bags Names Words" having its US Premieres on September 7 at the Vogue Theater in San Francisco, and on September 10th at the The Marlene Meyerson Theater in NYC, followed by screenings in over 50 cities worldwide and over 15 countries in recognition of World Alzheimer’s Day on Sept 21. 


Produced and directed by award-winning filmmaker Cynthia Stone, "Keys Bags Names Words" is a hopeful and inspiring lens portraying stories of both the personal and global impacts of Alzheimer’s disease and other forms of dementia, while following a cohort of young scientists and artists from around the world as they harness creativity, humor and compassion to lead the way towards hope and resilience. 


View Trailer



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Fall Fashions!

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Our online store has dozens of items in a variety of colors and designs for you to tell the world about AlzAuthors. Free shipping through September 10th!


Start shopping!


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Our 6-Word Memoir Project is Still On

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We are still collecting stories for our Six-Word Memoir Project.

Here are a few examples of submitted stories:


What I wish I knew about Alzheimer's or dementia that I didn't find out until later: 



Here’s how to share your six word story:

 

1.    Go to: https://app.sixwordmemoirs.com/dashboard where you’ll be prompted to login with a name/password/email. It's free.

2.    Then go to Join Topics and use these codes:

3.    Share one or as many six-word stories as you like!

 

We can't wait to read your stories! All stories will be collected into a book to share with the world, offering hope to those currently on a dementia journey.


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Susan's Design of the Week

Susan Landeis, author of In Search of Rainbows and Optimal Caregiving, is the creative talent behind the beautiful graphics that adorn our social media feeds. She makes fresh ones daily. To honor Susan and her work, we feature our favorite design of the week - not easy - in each newsletter in case you missed it. Feel free to share the graphics - and their text - to your own social media. This will help spread the word of AlzAuthors and give your followers a reason to smile. Thank you, Susan, for making us look so good!


September is World Alzheimer's Month. AlzAuthors raises awareness about Alzheimer's disease and other types of dementia by offering stories and trusted resources created through personal experience to support your journey. https://alzauthors.com/ 


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Scholarship Alert: Humans of Dementia Scholarship is Now Open

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HFC's Humans of Dementia Scholarship 🎓

Know a student who's eager to kickstart their academic awesomeness this year? The Humans of Dementia Scholarship offers a unique opportunity for high school and college students to make a difference, reduce stigma, raise awareness, and inspire change while boosting their own academic journey.


Submissions open now through October 1, 2023.

 

Get the details!


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Informative Event from Being Patient

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Leah Fisher: Overcoming Fear After an Early MCI Diagnosis


On Friday, October 6th at 10:00 a.m. PT/1:00 p.m. ET, Leah Fisher joins Being Patient Live Talks to discuss her journey of overcoming the fear of the unknown following a diagnosis of mild cognitive impairment. Now based near Berkeley, California, Fisher is a self-proclaimed “wild and crazy grandma” to four young grandchildren. In a previous chapter, she worked for 35 years as a psychotherapist and marital counselor and corporate consultant, during which time she brought her expertise to television programs including The Oprah Winfrey Show and 60 Minutes, and to media outlets including Newsweek and The Wall Street Journal, in their “Work and Family” column. Tune in to hear about her experience with the early signs of MCI, seeking a diagnosis, and what lies ahead.


Learn more!



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26 comments

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MarvinScadAWE 1 month ago

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MarvinScadAWE 1 month ago

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Ethan Davis 1 month ago

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Ella King 1 month ago

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Clara Santos 1 month ago

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Ella Davis 4 weeks ago

I am planning a capsule wardrobe and want to confirm my season before choosing the main colors. Repeated questionnaires place me near autumn although the exact subtype changes. Warm taupe and olive feel comfortable but mustard and strong rust can make my complexion look uneven. Because I want fewer clothes each neutral and accent needs to combine easily with the others. [url=https://seasonal-palette.top]autumn seasonal palette[/url] offers a useful reference for testing but I would like to validate the direction with actual fabric. My draft test set includes cream, warm navy, chocolate, olive, muted teal, and brick. I can make consistently exposed photos in indirect daylight using the same camera settings. For the neutrals should I focus more on skin clarity or on harmony with my hair and eyes? I still need a small accent pair that can work across casual and slightly formal outfits. Dusty peacock blue seems useful while brick red may be easier than orange. Is this range useful for checking autumn or should I add a cooler control color for comparison? A compact sequence of comparisons would help me avoid buying colors based only on a label. I am aiming for versatility rather than following every suggested autumn shade. Thanks for any practical advice

George Roberts 3 weeks ago

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Ethan Nelson 3 weeks ago

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Amelia Walker 3 weeks ago

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MartaKamGT 2 weeks ago

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Ольга Беляева 2 weeks ago

На поездку в Потсдам у меня есть один свободный день и хочется заранее прикинуть какую часть его займёт прогулка. Начать поездку могу только после завтрака и задерживаться до позднего вечера у меня не получится. Мне нужен спокойный порядок действий: добраться погулять и вернуться оставив небольшой запас на непредвиденные задержки. В качестве отправной точки взял описание по запросу потсдам сан-суси как добраться — это отправная точка для дальнейших уточнений. С собой планирую взять воду и небольшой перекус но остановку на обед тоже хотелось бы предусмотреть. Для меня это первая поездка в Потсдам поэтому расстояния по карте пока трудно соотнести с реальной прогулкой. Теперь хочу уточнить у тех кто ездил самостоятельно: от какой точки удобнее начинать пешую часть маршрута? Особенно интересует стоит ли сначала идти в парк или оставить его после короткой прогулки по центру. Заходить во все дворцы не планирую потому что важнее спокойно пройтись и не следить постоянно за часами. Если такой день получается слишком плотным подскажите какую часть маршрута разумнее сократить без ощущения бесконечной гонки.

Илья Беляева 2 weeks ago

Обдумываем зимнюю поездку на Канары и пока выбираем остров для первой недели. Купание рассматриваем как дополнение а основой поездки хотим сделать прогулки. Возможно обойдёмся без машины если удастся подобрать удобное место проживания. Не хочется каждый день тратить несколько часов на дорогу ради короткой прогулки. Хотелось бы сочетать короткие прогулки с посещением городков и обычными обеденными паузами. Отдельный вопрос — насколько сильно погода отличается между районами одного острова. Для пасмурного дня нужен простой запасной план который не зависит от длинной дороги. Поделитесь опытом недельной поездки без машины и тем что пришлось сократить. канарские острова — собираю здесь идеи для обсуждения. Не воспринимаю общий список как готовый маршрут: сначала выберем базу затем проверим транспорт и оставим несколько дней без обязательной программы. Ещё интересует обычный бытовой вопрос: удобно ли рядом покупать продукты и ужинать вечером если автобусные поездки занимают значительную часть светлого времени суток.

Leon Schulz 1 week ago

Fur eine knappe Woche in Andalusien uberlegen wir welche Orte am Meer sich ohne Mietwagen gut kombinieren lassen. Wir reisen zu zweit und mochten nicht jeden zweiten Tag die Unterkunft wechseln. Ein Ort mit begehbarer Altstadt ware fur uns besonders reizvoll. Fur die Anreise bevorzugen wir Zugverbindungen. Fur die letzte Etappe kommt auch ein Bus infrage. Mehrere komplizierte Anschlusse mochten wir vermeiden. Wir mochten in jedem ausgewahlten Ort mindestens zwei Nachte bleiben. Ein Strand in erreichbarer Nahe ware schon auch wenn er nicht vor dem Hotel liegt. Ob die Alltagswege bequem sind kann ich vorab kaum einschatzen. Bei der Suche habe ich andalusien schone orte am meer notiert. Welche zwei Orte wurdet ihr unter diesen Bedingungen auswahlen? Uns helfen Erfahrungen zu Bahnhofen Wegen in die Altstadt und dem Zugang zum Strand mehr als eine lange Liste von Sehenswurdigkeiten. Auch Hinweise zu Gepack und zur Lage geeigneter Unterkunfte waren hilfreich. Wir mochten genug freie Zeit fur beide Orte behalten und die Reise nicht durch standiges Packen zerlegen.

Руслан Нуртаева 1 week ago

Планируем отпуск небольшой компанией и хотим ездить к морю общественным транспортом. Жильё пока выбираем поэтому есть возможность заранее проверить насколько удобно добираться до нескольких разных пляжей. Хотим избежать маршрутов где дорога занимает большую часть дня. Всё же хочется увидеть несколько мест а не один пляж возле жилья. Пока составляем небольшой список выездов и для каждого отдельно проверяем путь туда и обратно. Главная неопределённость сейчас связана с вечерним возвращением. Для общей оценки расходов смотрим тему цены в испании и отдельно оцениваем удобство каждого маршрута. Хотим проверять последний рейс вместе с расстоянием от берега до остановки. Особенно если кто-то задержится за ужином или группе понадобится больше времени на сборы. Хочется также узнать легко ли купить обратный билет заранее и где лучше проверять изменения расписания перед выездом. Какие пляжные выезды вы бы оставили в таком формате? Отдельно интересует как вы планируете возвращение чтобы не торопиться весь вечер.

Felix Weber 1 week ago

Fur einen kurzen Aufenthalt in Alicante suche ich Ideen die sich gut zu Fu? verbinden lassen. Meine Unterkunft liegt beim Bahnhof. Morgens mochte ich durch die Altstadt gehen spater am Wasser sitzen und zwischendurch etwas essen. Fur den Morgen wunsche ich mir einen Spaziergang mit etwas Ruhe vor dem gro?ten Andrang. Ich wurde Santa Cruz gern sehen mochte den Anstieg aber lieber zu einer passenden Tageszeit machen. Bei der Suche nach alicante santa cruz habe ich ein paar Karten und Beschreibungen gefunden. Vor Ort ist die Frage fur mich eher wie man die Wege sinnvoll legt und wo man unterwegs eine Pause einlegt. Ist ein Rundgang durch die Altstadt am fruhen Morgen angenehmer als am Nachmittag? Ein langer Strandtag ist nicht geplant; eine Stunde am Wasser wurde mir reichen. Das Castillo ware nur dann eine Option wenn der Weg und die Temperaturen noch passen. Falls der Aufstieg zu viel wird lasse ich das Castillo einfach aus. Mir ist wichtig dass der Rundgang auch mit einer langeren Kaffeepause entspannt bleibt. Falls ihr Alicante ohne Auto besucht habt: Wo habt ihr mittags pausiert und welcher Abschnitt war zu Fu? besonders lohnend? Hinweise zu Schatten und Steigungen waren hilfreich. Bei Bedarf kann ich den Ruckweg mit der Stra?enbahn abkurzen. Ich freue mich uber personliche Erfahrungen und kleine praktische Tipps.

Nora Davis 1 week ago

I have one uncommitted day during a stay in Funchal and am wondering whether a day trip to Porto Santo would feel worthwhile without turning into a transport exercise. The ferry is still only an idea so I can compare the current timetable with the forecast before deciding. My main worry is the time left on the island once the journey to the port and boarding time are included. A relaxed walk and lunch would be plenty for me rather than attempting a full sightseeing circuit in a few hours. I will check the operators own timetable before paying and I would also look at any weather or service notice close to the date. While looking for current island reports I found madeira island news though an article cannot replace a live ferry notice. How close to departure would you make this decision? I can spend the day on Madeira instead if the crossing looks uncertain or the time ashore is too short. I am particularly interested in the return trip including how easily someone without a car can get back to central Funchal. Recent firsthand experiences would help me set expectations.

Chloe Clark 6 days ago

My weekday commute includes a bicycle helmet which leaves my hair looking different by the time I reach work. The aim is to find a practical hairstyle that survives the journey and needs only a quick adjustment afterwards. Comfort during the ride matters as much as the shape afterwards particularly when the weather makes the commute longer. I came across a page through a search for try on hair styles for free and would treat a preview as an outline to discuss. For a fair comparison I would use one plain photograph and look at a small selection of different lengths. I would still need to check how any tied style sits beneath my helmet rather than trusting the picture alone. The consultation would include my actual helmet and a realistic estimate of the time available before the working day starts. Shorter hair might remove some problems but create others so I do not want to assume that short means effortless. For other regular cyclists what questions helped you choose a cut that worked with your helmet and everyday schedule?

Ella Baker 5 days ago

For an introductory audio lesson I want students to compare several exports of one short passage. A generated instrumental could provide the example provided students can always return to the original file. The first task would ask students to write listening notes before opening a visual display. I found mp3 to spectrogram as a possible reference while planning the visual part. We would then compare documented export settings using the same passage and a consistent playback level. I want to avoid teaching that every visible difference identifies a defect in the generated source. A worksheet could separate audible observations export settings and questions that remain unresolved. The task would end with a comparison rather than a demand to fix the example. Students would record the software used for each export so that their comparison can be repeated later. What simple controls would make this exercise understandable for a beginner class?

Lucas Adams 19 hours ago

Im planning a ten-day trip to Tenerife in late July and Im trying to make an itinerary that leaves room for the weather rather than treating every day the same. The beach forecast looks reliably warm but I keep reading that a drive into the mountains can feel very different especially if we stay out after sunset. We want several relaxed days near the water alongside a walk near Teide and a couple of shorter trips to towns away from the resort area. I have been reading tenerife weather in july and august while deciding what clothes and timings make sense but I would appreciate advice from people who have actually made a similar trip. Is it sensible to reserve a specific day for the mountain trip or keep that day flexible until the forecast is clearer? We are happy to leave before breakfast although we do not want to spend the entire holiday racing from place to place. I would also like to know whether light layers are enough for an evening at higher altitude or if a proper jacket is useful. If you have done this in summer how did you balance heat driving time and rest days? I would be grateful for practical advice on pacing the trip.

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